Globalaai wants Allergy UK to support this cause🤝 we are not in competition with existing societies or associations we want to align with everyone for worldwide coordinated efforts for positive change.
This is Mazzy, she's an inspiring 5 year old from Utah, who has a severe peanut allergy. Her allergy inspired her family to create Talk For Me Tees a line of food allergy awareness apparel.
Mazzy is actively engaged in the process of designing and selling the T's, and has become quite the little advocate. Her amazing Mum has taught Mazzy to feel empowered and resilient so she has the life skills to advocate and care for herself.
Mazzy has also been involved in some volunteer efforts with the Utah Food Allergy Network. What a great attitude we wish Mazzy all the best in life and are so pleased for her to shout out in how awesome it is to be.
"Our allergy story started when my eldest son Jontae went into full anaphylactic shock at the age of 13 months after eating half a cashew. Within minutes my beautiful boy was cover in huge welted hives, red all over, unrecognisably swollen and fighting to breathe. Thank goodness we were only half a kilometre away from our major children's hospital at the time and were able to get him help ASAP. He's still alive and a gorgeous happy and healthy 13 year old who's anaphylactic to peanuts and all tree nuts. He's also allergic to soy, coconut and mango.
Then comes my youngest spirited lil man Hayden who at the age of 8 months went into anaphylactic shock to something he'd been happily eating for two months, Bananas! Yep that's right out of the blue BOOM! Scariest moment ever. Turns out Hayden is also anaphylactic to oats, all nuts, shellfish and latex too. He has a hard time with kiwi fruit, strawberries and avocado too.
No prior history of anaphylaxis in our families on either side and when we hear, OMG it must be so hard? Well it was to start out with learning about what to avoid, how to read labels and the anxiety of it all. But now we are a little bit more at ease because we stay informed, alert and talk openly about anaphylaxis amongst our immediate family as well as to our friends and other relatives. We are getting there. It's constant education and awareness that is key to helping your family survive and stay sane dealing with this terrifyingly dangerous thing called anaphylaxis!
Thank you to Pooja and the amazing job you are doing to help create awareness around the word.
Loads of love and blessings, Erica, Jontae and Hayden."
I am asking you all to understand that sometimes this page will have tragic stories from which good things must happen. Meet Giovanni a beautiful 14 year old boy from New York who grew his angel wings in October 2013 due to Peanut Anaphylaxis..
His extraordinary mother Georgina has been instrumental in advocating for legislation for public entities in New York to carry Epipens and has incredible strength.
There's so many reasons to keep going with initiatives like globalaai and ensure safety and social awareness worldwide and together we need to do this because we owe it to those that have succumbed to this extraordinarily dangerous and invisible disease.
This is Zac from Brisbane Qld Australia. He's nearly 14 and anaphylactic to dairy.
"We have known since he was introduced to solid food at 6 months and he was originally diagnosed with allergies to egg, treenuts and peanuts but has grown out of them.
He has had many reactions over the years and is touch sensitive. They only time we've administered the epipen was his last year of primary school when he ate a sweet from the canteen. We think it was a cross-contamination reaction.
These photos show a timeline of a reaction for him. The first taken at the restaurant for his brother's Birthday celebrations, the second after he'd eaten, third the following morning and the fourth 36 hours afterwards. We were assured his meal was carefully prepared and safe. I worry about him entering the teenager years. About friends, girls and parties. About alcohol. About the future...
Career options and part time jobs through school. About him traveling. About the general public's ignorance. About losing my son to something the rest of us do not have to think about. Thank you for reading and educating."
"I went out last night looking like this & ended up like this! Just wanted to show those who often say oh what harm can a bit of latex do? Well this. Please always take care when you're dealing with people who have severe allergies, #anaphylaxis can be fatal."
June 21, 2017
"Filled with gratitude today for the paediatric intensive care paramedics who retrieved Rourke last night...
..20 minutes felt like hours as antihistamine, Ventolin and 2 x adult Epipens didn't even knock a dent in it. We felt helpless.
But SA Ambulance Service did a stellar job at stabilising him with oxygen, IV steroids and an adrenalin infusion en route as he further deteriorated. Another rebound in the ED kept us in a bay for longer than usual but all that vomit was the best thing his body could have done - with it out of his stomach the reaction slowly calmed and he stabilised.
We're still in hospital but he's looking pretty good now. This was certainly his fastest, most aggressive #anaphylaxis yet. "
We have been contacted by Rachel's Mum who has shared her tragic story and we look forward to welcoming her a globalaai Ambassador for Change soon. Globalaai will continue their work for those like Rachel who so sadly lost their lives from food allergies.
"Rachel is from Georgia USA and died from an anaphylactic reaction due to a peanut allergy. She ordered take out and there was cross contact. She had never had a serious reaction in her 18 years. My mission in life is to share her story and educate others about the seriousness of food allergies. We donated her organs and she saved four lives. I'm hoping by sharing her story many more lives will be saved."
Rest In Peace dear Rachel, to her brave mummy the globalaai community wrap their arms around you collectively and are in awe of your strength and determination. We hope together we can make positive worldwide changes for safety and social awareness.
July 17, 2017
Meet Lucas he is from Montreal, Canada. His Mummy, Ann tells a story for you all to be reminded of an important lesson:
"Today we had a big annual family get together. We drove 45 mins from home and realised Lucas had forgotten his EpiPen. Actually we had all forgotten his EpiPen. Dad booked it on his bag, I changed bags and did not notice it, Lucas did not double check his waist for his meds. We all dropped the ball. We all blamed one another but we all came to the same conclusion that we needed another EpiPen. So we made our way to the local pharmacy, the amazing pharmacist called our pharmacist, and arranged to send a prescription to St-Jean. We all agreed that Lucas could not eat without his EpiPen, we needed to use this as an example of the importance to not take chances.
No Epi = No eat.
We made our way to the party, a little late but safe and guess what folks (and I cry as I write this because it could have been bad) Lucas had an allergic reaction tonight and we had to administer THAT EpiPen! Here is a photo of Lucas at the hospital and he is fine now.
Please carry your EpiPens. A reaction can happen at any time. We were also very lucky because one of the cousins is an amazing doctor who helped us with the situation, we were in great hands! She could also have administered her EpiPen as her child has peanut allergy."
Globalaai asks for EpiPens to be freely available like in Australia where they are able to be purchased without prescription. Furthermore the widespread installation of globalaai Emergency EpiPen stations to save a life.
Anaphylaxis is real. It can creep up and strike when you least expect it. We are all human and occasionally forget life saving EpiPens, but as a collective community we need to be inclusive and care for the wellbeing and safety of each other. Prevent anaphylaxis deaths, support globalaai and encourage worldwide social awareness and safety for Anaphylaxis.
July 12, 2017
Rest In Peace Karan, another precious life taken too soon. You were just 13 years old with your whole life ahead of you.
Hoping the reports are untrue, hoping you didn't die because of a lack of inclusivity and respect. Maybe you died because your community didn't understand how ill a piece of cheese could make you?
Meet Charlie a beautiful little 5 year old boy from South Australia. Charlie is Anaphylactic to peanuts and eggs. He has a super Mummy Donna who is a fierce advocate for the inclusion and safety of her little boy and we applaud her and want her to know it's this spirit that has founded globalaai. Together we call for allergy safe food and inclusivity on all airlines but especially our National Carrier, Qantas.
Whatever may have been achieved by allergy associations worldwide simply is NOT enough.
Globalaai calls for clear labelling of the contents of airline food, and a sharing of responsibility with those who have anaphylaxis to allow them to have a relaxed and comfortable journey like everyone else on the plane.Poor little Charlie didn't have a great time on a trip to LAX and his Mummy was unable to give him anything from the airline to eat safely.
Change needs to happen, one step at a time. One day we look forward to an airline embracing our Paper Plane Project to network and connect this world for social good. Have you bought a plane yet?
Please give generously and help children like Charlie to live safely and be accepted into our society with inclusivity. #globalaaiaware
June 10, 2017
New South Wales, Australia
This is Mia, a delightful young girl who lives in NSW, Australia. Mia is is anaphylactic to peanuts.
"She used to have allergic reactions which cause hives and swelling over her whole body from raw egg, many other nuts, and wheat. Thankfully she has grown out of those now. Her peanut allergy, however, is severe, and blood tests have shown she is high risk.
We found out about her allergies when at 10 months she came in contact with her Mum's peanut butter crumpet, and her face swelled up so much she could barely open her eyes. We have had a number of scares over the years, and visit the hospital at least once a year, sometimes more. We have had a number of contact issues where we have been playing at the park and her face has started swelling, someone has kissed her after eating nuts, or lost consciousness and/or started vomiting on the way home from a restaurant (despite being vigilant about her food).
Last year a neighbor gave her a peanut M&M and while she vomited the nut up (and everything she had eaten for the last two days by the look of it), she still went into anaphylaxis. What scared me the most, was the fact four paramedics and two nurses failed to recognise the signs of anaphylaxis. Because she ingested it, she didn’t swell up and the signs were not as obvious, despite being life threatening. It just looked like she had a bad cold (it was saliva coming out her nose as she couldn’t breathe) and was extremely tired. It wasn’t until we got to hospital when she was slumped over in the bathroom unable to breathe that they took her into emergency and administered adrenaline.
My dream would be that all food places, and food courts hold an epi pen. And anyone serving food is educated and trained in Action Plans and administering an Epi Pen."
June 10, 2017
South Australia, Australia
Growing up with allergies was considered the “norm” in our family. I’m pretty sure that every one of my 4 sisters have allergies to random things and my brother has anaphylactic allergies to eggs. I don’t know how mum managed to remember all of our individual allergies, but we were all aware of them ourselves, so we never had too many issues apart from the occasional rashes and lip swelling. Antihistamines were always in stock in the house and we all knew when and how to take them from a young age. When I was in primary school I was diagnosed with Dermatographic urticari, or “skin writing” where my body over produces histamines on contact. My friends would spend hours writing on my arms and legs with the back of pens or blunt objects to see how far my skin would welt. It was itchy as hell, but a good party trick none the less. Over time my body started to react with even the lightest pressure from clothes and underwear and by the end of the day I would be covered in welts head to toe.
When I started my TAFE diploma in Dental Assisting I began to have severe allergies to latex gloves. The first reaction was when I was chair side assisting and my hands began to burn and itch incredibly. I ripped my latex gloves off and a layer of skin came with them. My hands were raw and swollen, covered in welts and small blisters. I ran my hands under cold water for a long time, but the burning was intense. My clinical tutor wrapped my hands in wet towels and drove me to the nearest medical center where they gave my anti histamines and diagnosed me with a latex allergy. After a few years working in the dental industry, even if someone was donning and doffing their latex gloves near me I began having trouble breathing. Thankfully after having children my latex anaphylaxis seems to have calmed a little bit but I still work in a latex free surgery.
When I moved to the Adelaide Hills with my now husband, Andrew, I went walking around our farm with him through our hay field. While walking I began to feel very itchy and blocked nasally. Andrew had walked in front of me a little so I turned my phone on and took a photo of my face. I was so shocked! One eye was virtually swollen shut and my whole face was red and puffed up. I ran inside the house, washed my face several times and took a handful of antihistamines. My face continued to swell and my whole body was covered in large welts. I jumped in the shower but the water burned so badly that I cried in pain. I tried to call Andrew who was still in the fields, but living in the Hills our phone service at that point was very limited and I couldn’t get hold of him. My breathing was getting very difficult so I took stronger antihistamines, administered my ventolin and laid on the bed with a cold face washer on my face desperatly hoping I wouldn’t collapse or die before Andrew came back home. When he walked in the door and said to me “What happened babe, why did you run off without saying anything?” I took my face washer off and one look at my face made him gasp. He knew I had allergies but had never seen me have such a severe one before. He ran down to his sister’s house (also on our property) and came back with her son’s oxygen tank that he had for sleep apnea. Just as I was about to make the decision to call an ambulance, my anti histamines kicked in and I started to feel better with the oxygen, my ventolin that I had taken so much that I was shaking uncontrollably, 3 different types of antihistamines and the cold compress. I noticed later that day that my hearing was very muffled, when I went to work the next day there was an anesthetist in our surgery that checked my ears and throat and confirmed that they were both very swollen and wrote me a prescription for my first EpiPen. I showed him the photos that I had taken of myself, he scolded me for not calling an ambulance straight away and told me who close I was to being in real trouble.
Over the years my allergy list has grown to include citrus foods (lemons, oranges, tomatoes, kiwi fruit etc), bananas, sodium laureth sulphate (foaming agent found in many toothpastes, shampoos, dish washing liquid and body/hand washes) and anaphylaxis to Latex, penicillin (which I had my first anaphylaxis to when I was given it via IV while I was pregnant with our twins), wattle flowers and flowering hay.
Andrew and I got married on our hills property in Spring 2012. We had spent months in the paddock preparing the area for the day, mowing, pruning, clearing and pulling weeds. The day before the wedding we were doing some last minute gardening when I had an anaphylactic attack to an unknown allergen. I decided to leave the property and check into our honeymoon suite a day early to hopefully let my face recover from the severe swelling. Unfortunately I wasn’t so lucky. The morning of the wedding I woke up next to my good friend and rolled over anxiously asking how my face looked. Her response? “We can fix it”. I was devastated. We went to a local chemist and asked for as many over the counter drugs as he could give me. When I said to him “you have to help me, I’m getting married today” he replied “Oh dear. Ok, let’s try these…” handing me over a concoction of medications to try. Thankfully they did reduce the swelling, but in many of my photos it’s very obvious that my eyes are still very swollen and I had trouble keeping my false eyelashes in place with eyes that were constantly watering.
Recently I had neurosurgery for an unrelated medical condition and I listed my allergies, making sure that everyone was very aware of my anaphylactic reactions. A few hours after I came out of recovery I told my attending nurse that my stomach was very itchy and asked what kind of dressing had been used. She looked at my stomach and was shocked at how swollen and red it was. She quickly removed the dressings which again took a layer of skin with the sticky adhesive. She checked the box of the dressing and couldn’t find any allergy warnings. She drew a pen line around the border of the red area to monitor the swelling and got the attending doctor to look at me. By the time the doctor came the redness was extending past the pen borders. I was given IV antihistamines and my oxygen was increased. The staff researched the brand of dressing online and found that it did indeed have a latex content. This reaction caused by a dressing containing a reasonably common allergen that was not sufficiently labelled, caused my hospital stay to be prolonged by several days.
Living with my own allergies has been a constant struggle. I can only wear certain brands of underwear that don’t have latex in the bands and I can never wear strapless bras as they all contain a “grippy strip” that is made of latex. I have even had reactions to things such as garden tools and dish washing brushes that have rubber handles. I’ve had an anaphylaxis in a restaurant where the kitchen staff touched my food with latex gloves. I have to look at ingredient lists carefully and usually can only use the more expensive brands of body wash/shampoo etc. that don’t contain foaming agents. But more recently I’ve even had to deal with my 3 beautiful children also inheriting my Type 2 allergies. Alexander,3, has an anaphylactic allergy to penicillin and cefeclor (ceclor antibiotic) and he is asthmatic (which is also common with people that have multiple allergies) and my 2 year old twins also have anaphylactic allergies to latex, which was discovered when they were born 7 weeks premature and IV tubes were secured with latex dressings in the neonatal unit.
My husband has had CPR and EpiPen training in case I am ever not well enough to administer to myself or he needs to give to one of the children. He is well aware of the implications of how dire things can be if one of us are exposed to one of our known allergens. But scarier is the very real potential that any one of us can suddenly and unexpectedly new allergies without warning. The cost of EpiPens in Australia is ridiculous given that they have a very short shelf life and are quite unstable when not stored in a constant temperature, which mine are often not given I carry them in my handbag.
The need for allergy awareness is so important. Not only for ourselves and our own children, but also for everyone around us. A latex balloon in a tote bag from a children’s birthday party can be life threatening. As can any allergies that may arise without warning when my children are at daycare or school without me. The general public have such minimal knowledge about allergies and it’s really alarming. Thanks to people like Pooja and Matthew Newman, the founders of Globalaai, finally EpiPens are starting to be included in CPR and defibrillator units that are found in public places. But more training needs to happen before we are at the point where I feel that I can venture in public, truly safe from an anaphylactic attack.